20.500.12556/DKUM-20779 Vloga družine pri otroku s kronično boleznijo The role of the family in children with chronic disease POVZETEK Teoretična izhodišča: Kronična bolezen spremeni otrokov način življenja in njegove navade ter postavi otroku različne omejitve. Posledično otrok postane odvisen od staršev in medicinskega osebja. Pri večini otrok se zmanjša samostojnost, pojavita se strah in negotovost. Prvi reakciji staršev ob potrditvi diagnoze kronične bolezni sta šok in nepriznavanje, nato pa se starši soočijo z boleznijo in otroku maksimalno pomagajo. Vsaka družina, ki ima kronično bolnega otroka, spremeni svoj življenjski slog tako, da je najbolj primeren in koristen za otroka. Namen: Predstaviti vlogo družine pri otroku, ki ima potrjeno diagnozo kronične bolezni. Z raziskavo smo želeli ugotoviti, ali se spremeni življenje družine s kronično bolnim otrokom in če se, na kakšen način. Metode: Pri izdelavi diplomskega dela smo uporabili deskriptivno metodo dela. Teoretična izhodišča smo predstavili s pomočjo domače in tuje literature. Za zbiranje podatkov smo uporabili anonimni anketni vprašalnik. V raziskavi je sodelovalo 25 staršev kronično bolnih otrok, ki so obravnavani v predšolskem dispanzerju in dispanzerju za šolske otroke in mladino v Zdravstvenem domu Velenje. Rezultati in diskusije: Podatki, ki smo jih pridobili z raziskavo, kažejo da v večini vse družine spremenijo svoj življenjski slog ob potrditvi diagnoze kronične bolezni otroka. Ugotovili smo tudi, da je vloga družine pri kronično bolnem otroku zelo pomembna, saj se otrok v družini, ki mu stoji ob strani in mu pomaga, počuti varnega in sposobnega obvladovanja svoje bolezni. Raziskava kaže, da celotna družina najpogosteje spremeni prehranjevalne navade in želi koristno preživeti prosti čas s kronično bolnim otrokom. ABSTRACT Theoretical starting-point: Chronic illness changes child’s way of life and his habits, sets him some kind of limits and makes him dependent on his parents and medical staff. Most children become less independent; dependence on others is increased, fear and uncertainty appear. Prime reaction at confirmation of chronic illness diagnosis is shock and denial, then parents confront with illness and help their child the most. Each family with child who suffers from chronic illness changes its way of life, so that it is the most suitable and useful for their child. Purpose: Main purpose of my diploma paper is presenting the family role with a child who has confirmed chronic illness diagnosis. With our research we wanted to find out if life of the family with chronic ill child changes and in what way. Methods: In my diploma paper we used descriptive work method. Theoretical starting-points were represented by national and foreign literature. We used anonymous questionnaire for collecting data. In our research collaborated 25 parents with chronic ill children that were treated by preschool clinic and children’s and youth’s clinic in Velenje. Results and discussion: Data that were acquired with our research show that in most cases every family changes its way of life when the diagnosis is confirmed. We also found out that the family role with chronic ill child is very important, because child in a family where parents stay by his side feels safe and capable of handling his disease. The research shows that the whole family frequently changes eating habits and spend some quality time with their chronic ill child. otrok kronična bolezen družina medicinska sestra zdravstvena vzgoja vloga družine življenje child chronic illness family nurse health education family role life true true false [B. Vavkan] Slovenski jezik Angleški jezik Diplomsko delo 2011-09-30 13:56:03 2011-12-07 15:13:06 2022-04-14 08:15:13 2023-12-27 03:09:22 2011 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616-039.33-053.2 1732772 URN:SI:UM:DK:7W928MTL VS_Vavkan_Barbara_2011.pdf VS_Vavkan_Barbara_2011.pdf 1 4965F9B54B9A07FB4BF6F78855040B04 5b7196f741c535419cc814835e7f20bee1c1be3f8b05bbe8daf9b29eaaa7d0d1 b36f234d-7c05-11eb-bb7a-00155d0001ca 20.500.12556/dkum/9a5849c8-67c1-4fb9-bce1-13db88eabd8a https://dk.um.si/Dokument.php?lang=slv&id=25987 Fakulteta za zdravstvene vede 0 0 0