20.500.12556/DKUM-25706 Otrok in celiakija Children and celiac disease Celiakija je bolezen ozkega črevesa, ki je posledica trajne preobčutljivosti na gluten pri genetsko dovzetnih posameznikih. Je avtoimuno obolenje, ki je v zadnjem času ena najpogostejših kroničnih bolezni prebavnega trakta pri otrocih in jo pravzaprav zelo težko opredelimo. Še vedno je edina znana metoda zdravljenja vseživljenjsko dosledno izvajanje diete brez glutena. V diplomskem delu smo opisali značilnosti celiakije pri otroku, pomembnost doživljenjske brezglutenske diete, vlogo medicinske sestre pri otroku s celiakijo ter zakonodajo in delovanje Slovenskega društva za celiakijo. Uporabili smo deskriptivno metodo. Na osnovi analize literature smo ugotovili, da se že na začetku uživanja brezglutenske diete pokažejo pozitivni učinki, kajti izzvenijo klinični pojavi, pri otrocih z značilnimi simptomi izgine driska, pojavi se ponoven začetek rasti. Prav tako se izboljša tudi razpoloženje otroka, ter zmanjša se tveganje za razvoj dolgoročnih zapletov. Na področju zakonodaje za bolnike s celiakijo so nekatere novosti: starši otrok s celiakijo uveljavljajo dodatek za nego otroka, otrokom pripada pravica do obnovitvene rehabilitacije, starši imajo priznano posebno davčno olajšavo, eden od staršev, ki neguje in varuje otroka ima pravico do najmanj treh dni dodatnega letnega dopusta. Tako lahko otrok s celiakijo ob dietni disciplini, ki traja doživljenjsko, živi enakovredno aktivno življenje in uresniči svoje cilje enako kot vrstniki brez omejitev v prehrani. Celiac disease is a disorder of the small intestine caused by permanent hypersensitivity to gluten, and occurs by genetically predisposed individuals. It is an autoimmune disease which recently presents one of the most common chronic digestive tract diseases by children, and is actually very hard to be defined. The only known treatment is sticking to a strict lifelong gluten-free diet. In the diploma work, we have presented the characteristics of celiac disease in children, the importance of the lifelong gluten-free diet, the role of a medical nurse for a child who has celiac disease; the legislation and Slovene celiac society. We used descriptive method. Based on the literature, sticking to the free-gluten diet affects a patient’s health positively even at the very begging of the diet – clinical occurrences dissipate eventually, diarrhoea in children with typical pathological symptoms disappears, and renewed growth occurs once again. The child's frame of mood also gets better, and the risk of long-term complications decreases. There have been some novelties in the field of legislation: the parents of a child with celiac disease can assert child benefit for child nursing, children are entitled to regenerative rehabilitation, the parents get a special tax relief, one of the parents who cares for a child and looks after him has the right to get at least three additional annual holiday days. Thus, by life-long diet discipline, a child with celiac disease can live an equally active life and achieve the same goals as children with no food restrictions. otrok celiakija gluten brezglutenska dieta zakonodaja a child celiac disease gluten gluten-free diet the legislation true true false [N. Casar] Slovenski jezik Angleški jezik Diplomsko delo 2012-05-31 08:29:57 2012-07-04 12:48:18 2022-04-15 13:12:03 2023-12-30 03:16:02 2012 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616.34-008.1 1813668 URN:SI:UM:DK:OGLYGCUS VS_Casar_Nada_2012.pdf VS_Casar_Nada_2012.pdf 1 AFC8ADBA4FB490D0F4E78387662F8CF7 4c5fbf87e12d80de4e08acac2ba4c88eef3dc32b4cd5969c591798402b463b97 a928d5f8-7c06-11eb-bb7a-00155d0001ca 20.500.12556/dkum/bfc6a743-d7df-4a74-99c4-6946756f4282 https://dk.um.si/Dokument.php?lang=slv&id=47701 Fakulteta za zdravstvene vede 0 0 0