20.500.12556/DKUM-39768 ZDRAVLJENJE LUSKAVICE Z BIOLOŠKIMI ZDRAVILI IN VPLIV NA KAKOVOST ŽIVLJENJA BOLNIKA THE TREATMENT OF PSORIASIS WITH BIOLOGICS AND THE IMPACT ON PATIENT'S QUALITY OF LIFE Bolniki z luskavico so kronični bolniki, ki se doživljenjsko soočajo s stigmatiziranostjo, ki jo prinaša kronična kožna bolezen. Kakovost njihovega življenja je močno okrnjena in je na zelo nizki ravni. Z zdravljenjem z biološkimi zdravili so bolniki dobili možnost, da zaživijo enakovredno drugim ljudem in da se kakovost njihovega življenja močno izboljša. Namen: namen raziskave je ugotoviti tako spremembe v kakovosti življenja bolnikov z luskavico pri uporabi bioloških zdravil kot tudi vlogo medicinske sestre pri zdravljenju bolnikov z biološkimi zdravili. Metodologija raziskovanja: v raziskavi smo uporabili kvantitativno in kvalitativno metodologijo. Pri bolnikih z luskavico smo za pridobivanje podatkov uporabili vprašalnik Dermatološki indeks kakovosti življenja (Dermarology Life Quality Index), ki smo ga prilagodili za naše potrebe. Pri medicinskih sestrah smo podatke zbirali z intervjuji. V raziskavi je sodelovalo sedemdeset bolnikov z luskavico, ki se zdravijo z biološkimi zdravili na oddelku za kožne in spolne bolezni, in pet medicinskih sester, ki sodelujejo pri zdravljenju z biološkimi zdravili. Rezultati: raziskava je potrdila, da zdravljenje bolnikov z biološkimi zdravili signifikantno izboljša kakovost življenja bolnikov z luskavico. Prav tako rezultati raziskave kažejo, da je medicinska sestra pri zdravljenju z biološkimi zdravili nujno potrebna, saj je temelj, brez katerega zdravljenja ne bi bilo mogoče izpeljati. Sklep: raziskava je zajela bolnike z luskavico, ki se zdravijo z biološkimi zdravili, in prikazuje vpliv bolezni na kakovost življenja bolnika. Je edina tovrstna raziskava, ki je bila opravljena v Sloveniji. Uporaba bioloških zdravil za zdravljenje pri bolnikih z luskavico zviša kakovost življenja. Način in organizacija dela še zadovoljujeta potrebe procesa zdravljenja, vendar pa bo z razvojem uporabe bioloških zdravil in Patients with psoriasis are chronic patients who are stigmatized by chronic skin disease for their whole lives. Their quality of life is greatly diminished, and at a very low level. Treatment with biological medicinal products gives patients a chance to come to the life equivalent with other people and so their quality of life is greatly improved. Purpose: The purpose of this research is to detect changes in quality of life of patients with psoriasis with biological medicinal products and the role of nurses in the treatment of patients with biological medicinal products. Research methods: In this study, we used quantitative and qualitative methodology. For receiving data, we used the index of quality of life - Dermarology Life Quality Index, which we adapted to our needs. With nurses, we collected data through interviews with them. The study included 70 patients with psoriasis, treated with biological medicinal products in the Department of skin and venereal diseases and 5 nurses, involved in the treatment with biological medicinal products. Results: The studies confirmed that patients with psoriasis, which use the biological medicinal products, significantly improve the quality of their lives. Also, research shows that the nurse in the treatment with biological medicinal products is necessary; she is the foundation without which the treatment can not be carried out. Conclusion: The study included patients with psoriasis treated with biological medicinal products and the impact of the disease on the patient's quality of life. It is the only survey that was conducted in Slovenia. The use of biological medicinal products for the treatment of patients with psoriasis increases the quality of life. Method and organization of work, yet meets the needs of the healing process, but with the development of the use of biological medicinal products and increasing the number of patients with psoriasis, it will be necessary to think about a different part of the organization. Bolnik medicinska sestra zdravstvena nega biološka zdravila kakovost življenja luskavica Patient nurse nursing biological medicinal products quality of life psoriasis. true false false [L. Kralj] Slovenski jezik Angleški jezik Magistrsko delo/naloga 2013-02-26 20:59:41 2013-04-11 11:59:10 2022-05-12 23:12:06 2021-04-22 03:31:36 2013 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616.5-083 1890724 URN:SI:UM:DK:5BBXC1CZ MAG_Kralj_Liljana_2013.pdf MAG_Kralj_Liljana_2013.pdf 1 2E5DC6F88C0958119F986523293E1C46 a8187816ab735a5d687e606db116b6d1ba67ced4619a422cf8d79ce8ddc38d1e 33e3a62e-7c09-11eb-bb7a-00155d0001ca 20.500.12556/dkum/aacf3efe-8bae-4ed9-9f51-0a69498f6181 https://dk.um.si/Dokument.php?lang=slv&id=53997 Fakulteta za zdravstvene vede 0 0 0