20.500.12556/DKUM-47727-616b6e31-0875-2fc5-fa57-57fa912eeb55 SEZNANJENOST ŠTUDENTOV Z ZNAČILNOSTMI HUNTINGTONOVE BOLEZNI FAMILIARITY OF STUDENTS WITH THE CHARACTERISTICS OF HUNTINGTON'S DISEASE Teoretična izhodišča in namen: V diplomskem delu je predstavljena dokaj redka in nepoznana dedna nevrodegenerativna Huntingtonova bolezen, ki nenadoma spremeni življenje posameznika in njegove družine. Opisane so naloge članov negovalnega tima, timska obravnava in pa organizacija ter strokovni centri za podporo in pomoč pacientom ter njihovim svojcem. Namen diplomskega dela je preveriti seznanjenost študentov s Huntingtonovo boleznijo. Diplomsko delo je sestavljeno iz teoretičnega in raziskovalnega dela. Raziskovalne metode: Uporabljena je kvantitativna metoda dela. Podatke smo pridobili s pomočjo delno strukturiranega anketnega vprašalnika, ki vsebuje 21 vprašanj, od tega 19 zaprtega tipa in 2 odprtega tipa. V raziskavi je sodelovalo 66 študentov FZV UM. Rezultati: Rezultati raziskave kažejo, da je znanje študentov o Huntingtonovi bolezni splošno, manj pa vedo o specifikah bolezni. S pacienti se je srečalo malo študentov, veliko jih je izrazilo željo, da bi v času izobraževanja izvedeli kaj več o Huntintingtonovi bolezni. Sklep: Stresen način življenja prinese s sabo tudi vedno več psihiatričnih in nevroloških obolenj, zato je težko prepoznati in diagnosticirati obolenja kot je na primer Huntingtonova bolezen. Huntingtonova bolezen je pri nas redka in še dokaj nepoznana bolezen, zato je zelo pomembna informiranost in podpora pacientu ter njegovim svojcem oziroma bližnjim. Theoretical basis and purpose: A rare and still rather unknown hereditary neurodegenerative disease ‒ the Huntington's disease, which changes the life of a person and his relatives all in a sudden, is presented in this graduation thesis. The main duties of nursing team members, teamwork discussion and organization, and centres of expertise for providing support and help to the patients and their relatives are also described in this thesis. The purpose of this graduation thesis was to examine the students’ acquaintance of the Huntington's disease. The graduation thesis consists of a theoretical and a research part. Methodology: A quantitative method was used in the thesis. The information was gathered using a partially structured questionnaire, which included 21 questions, of which 19 closed questions and two open questions. The research included 66 students of Faculty of Health Sciences of University of Maribor. Results: The results of the research show that the students’ knowledge of Huntington’s disease is rather common and the students know little about the specifics of this disease. Only a few students have come across patients with this disease, but a lot of them have expressed a wish to learn more about the Huntington’s disease throughout their study. Conclusion: A stressful lifestyle leads to more and more psychiatric and neurologic diseases, therefore it is hard to recognise and diagnose diseases such as the Huntington’s disease. This disease is relatively rare and still fairly unknown, therefore the acquaintance and support to the patient and his close relatives is crucial. Huntingtonova bolezen zdravstvena nega negovalni tim podpora seznanjenost Huntington's disease nursing care nursing team team support acquaintance true false false [M. Fajdiga] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2015-03-31 10:14:18 2015-05-21 15:04:25 2022-05-22 03:08:04 2021-05-07 03:30:56 2015 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616.8-083(043.2) 2089636 URN:SI:UM:DK:HL0QJ18N VS_Fajdiga_Martina_2015.pdf VS_Fajdiga_Martina_2015.pdf 1 302B0FB0775FB97D3E94B83A1A2B32D5 584504d7dbba934960116d2ad03629e5998b3e6953d4f383ed2eb19eaafc9f19 ee4ad49e-7c07-11eb-bb7a-00155d0001ca https://dk.um.si/Dokument.php?lang=slv&id=71497 Fakulteta za zdravstvene vede 0 0 0