20.500.12556/DKUM-48477 OTROK S SPEKTROAVTISTIČNO MOTNJO IN DRUŽINA CHILD WITH AUTISM SPECTRUM DISORDER AND FAMILY Teoretična izhodišča: Spektroavtistične motnje spadajo med pervazivne razvojne motnje. Pojavijo se v zgodnjem otroštvu, a nekateri prepoznajo znake takrat, ko naj bi otrok že govoril in se odzival na svoje ime, nekateri pa še pozneje. Motnja najbolj prizadene otroka na socialnem področju, saj imajo otroci težave v komunikaciji in socializaciji v družbi. Postavitev diagnoze pri otrocih pa zelo vpliva na njihove starše in preostale družinske člane, saj je to motnja, ki se je ne da dokazati karseda hitro in tako ne vedo, kaj pričakovati. Veliko je prilagajanja v družini, družbi in okolici, saj tak otrok lahko zahteva veliko skrbi in odrekanja. Medicinska sestra mora ob obisku otroka in družine v pedopsihiatričnem dispanzerju postaviti pristen, dober, zaupljiv odnos. Starši potrebujejo veliko svetovanja in pomoči pri iskanju informacij o vzgoji in skrbi otroka s spektroavtistično motnjo. Metodologija raziskovanja: V diplomsko delo vključimo anketno raziskavo in jo izvedemo s starši otrok, ki imajo spektroavtistično motnjo. Želimo raziskati, kakšno je življenje otroka, kako vpliva na družino in s kakšnimi spremembami se soočajo otrokovi starši. Uporabimo kvantitativno metodo dela, tj. z anonimnim anketnim vprašalnikom polodprtega in zaprtega tipa. Raziskava zajema 32 staršev, od tega 12 staršev v paru in 8 samo enega od staršev. Raziskavo izvedemo v Zdravstvenem domu dr. Adolfa Drolca Maribor v Službi za otroško in mladostniško psihiatrijo. Rezultati: Na podlagi rezultatov ugotovimo, da je bilo veliko otrok starejših, ko se jim je motnja odkrila, čeprav starši prepoznavajo znake sprememb. V zdravstveno vzgojo bi morali vložiti več, saj veliko staršev išče informacije na spletu, kjer lahko naletijo tudi na lažne informacije. Uvidimo, da so medijsko slabo predstavljeni. Na tak način bi namreč lahko kaj prispevali v smislu boljšega ozaveščanja in širjenja znanja o spektroavtističnih motnjah. Sklep: Mnogi starši iščejo informacije na spletu, zaradi česar bi morali več informacij in svetovanja ponuditi prek društev, knjig in medijev. Theoretical background: Autism Spectrum disorders belong in the group of pervasive developmental disorders. They appear in early childhood, but some identify the signs when the child should already be talking and responding to their name and some even later. The disorder mostly affects children in the social field, because they have difficulties in communication and socialization in the society. Diagnosis in children very much affects their parents and other family members, as this disorder is not confirmed so quickly and therefore, they do not know what to expect. There are many adjustments in the family, society and the surrounding area, because these children require a lot of care and sacrifice. The nurse should establish a genuine, good and trusting relationship when the child and the family visit the pedopsychiatric dispensary. Parents need a lot of counselling and assistance in finding information on the education and care of a child with autism spectrum disorder. Research methodology: The study included a survey and was carried out among parents of children with autism spectrum disorder. We want to explore what the life of the child is like, how it affects the family and what changes the parents are confronted with. We use a quantitative method, ie. by anonymous questionnaire, which was semi-open and closed-ended. The study covers 32 parents and is performed in the Health Centre Dr. Adolf Drolc Maribor in the department of Child and Adolescent Psychiatry Service. Results: Based on the results we find, that there were many children older when their disorder was discovered, even though parents recognize the signs of change. In health education we should invest more, because many parents are seeking for information on the Internet, where they can encounter false information. This suggests that they are through media poorly presented. In this way, we could contribute anything in terms of greater awareness and spread knowledge about Autism Spectrum Disorder. Conclusion: Many parents are looking for information online in which we should have more information and advice offered through clubs, books and the media. spektroavtistične motnje otrok medicinska sestra družina pedopsihiatrični dispanzer Autism Spectrum disorders children nurse family pedopsychiatric dispensary true false false [A. Trafela] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2015-06-23 10:56:05 2015-10-22 12:45:29 2022-05-25 03:07:26 2021-05-08 03:42:53 2015 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616.896:159.922.76(043.2) 2158500 URN:SI:UM:DK:YKWKLMII VS_Trafela_Ana_2015.pdf VS_Trafela_Ana_2015.pdf 1 33F41E89BE1D0CD4681522FDCD59D8B4 46b7c0acbb47662357e97bdef2cdbaad9cfb80b6aaecea4e08c105dc86d539d5 98012cd1-7c07-11eb-bb7a-00155d0001ca https://dk.um.si/Dokument.php?lang=slv&id=82171 Fakulteta za zdravstvene vede 0 0 0