20.500.12556/DKUM-72587 Patients' genetic data protection in Polish law and EU law selected issues The article entitled "Patients' genetic data protection in Polish law and EU law - selected issues" presents issues related to the protection of patients' rights and focuses on the legal basis for genetic testing and genetic data protection. Based on a comparison of regulations of international law and regulations on genetic tests introduced in foreign legal systems, the text analyzes the assumptions for the draft of the Polish act on genetic tests performed for health purposes. It presents the patient's consent to testing, the scope of information provided to the patient, the right to disclose research results to related persons and the protection of genetic data. In reference to the regulations set out in other acts, it was noted that they do not guarantee the protection of information obtained as a result of research. Due to the particular nature of genetic data, they require increased protection, which can be guaranteed through implementation of the Act on Genetic Research. In the final part, authors presented the most important achievements of the judicature of European Court of Human Rights in the field of genetic data protection. genetic research genetic data protection of genetic data patient's rights medical documentation genetske raziskave genetski podatki zaščita genetskih podatkov pacientove pravice medicinska dokumentacija true false true Angleški jezik Slovenski jezik Univerza v Mariboru Znanstveno delo 2018-10-09 11:31:19 2018-10-09 11:32:19 2022-08-01 22:52:25 2019-07-11 19:23:57 2018 0 0 str. 29-46 št. 1 Letn. 11 Apr. 2018 0000-00-00 Zaloznikova Objavljeno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 2463-7955 342.7:61 281851136 5633067 2463-7955 URN:SI:UM:DK:GAF462RE Medicine,_law_&_society_2018_Michałowska,_Magoń_Patients__genetic_data_protection_in_Polish_law_and_EU_law_-_selected_issues.pdf Medicine,_law_&_society_2018_Michałowska,_Magoń_Patients__genetic_data_protection_in_Polish_law_and_EU_law_-_selected_issues.pdf 1 00545EAF80E0D45008F6FD37F3F49F27 137ddf9d5271e99d5ea5f3bff0c7a831212dbb5ab70b9a7bf13501f940177f6d 73aec7d6-7c10-11eb-bb7a-00155d0001ca 20.500.12556/dkum/c4ac0628-5d34-4d1e-8503-f2801cb8d6a3 https://dk.um.si/Dokument.php?lang=slv&id=130792 http://journals.um.si/index.php/medicine/article/view/89 1 https://dk.um.si/Dokument.php?lang=slv&id=130791 Pravna fakulteta Medicine, law & society 0 0 0