20.500.12556/DKUM-76814 Kakovost življenja bolnikov s starostno degeneracijo makule Quality of life in patients with age-related macular degeneration Starostna degeneracija makule (SDM) je pogosta bolezen, ki postopoma uničuje centralni vid in je eden od vodilnih vzrokov za slabovidnost in slepoto v svetu. Namen raziskave je bil ugotoviti, kako vlažna SDM vpliva na vsakodnevno življenje in kako vplivajo redni pregledi ter zdravljenje z intravitrealno aplikacijo zaviralca rastnih dejavnikov za žilni endotel (anti-VEGF) na kakovost življenja teh bolnikov. Raziskovalne metode: V raziskavi smo uporabili deskriptivno in kvantitativno metodo dela. Podatke smo pridobili s pomočjo strukturiranega vprašalnika s 24 vprašanji. Anketirali smo 100 bolnikov z vlažno SDM, in sicer 50 z enostransko in 50 z obojestransko okvaro vida, ki se zdravijo ambulantno v enem izmed univerzitetnih kliničnih centrov Slovenije. Rezultati: 54 % bolnikov živi s partnerjem, 27 % pa samostojno. 19 % je zaradi težav z vidom odvisnih od pomoči drugih v vsakdanjem življenju. 36 % bolnikov potrebuje pomoč pri branju, 56 % ne more voziti avta, 18 % se ne znajde v nepoznanem okolju. Več težav v vsakdanjem življenju imajo bolniki z obojestransko okvaro vida. Pogosti pregledi in zdravljenje bolnikom ne predstavljajo večje obremenitve. Kar 73 % anketiranih čuti strah pred popolno izgubo vida, kljub temu, da 58 % opaža stabilizacijo vida s pomočjo anti-VEGF terapije. Diskusija in zaključek: Kljub slabši vidni funkciji in težavah bolniki s SDM v večji meri ohranjajo samostojnost v vsakdanjem življenju. Nuditi jim moramo potrebno pomoč in podporo saj jim s tem omogočamo boljšo kakovost življenja. Pomembo je, da se bolniki zavedajo pomena pregledov in zdravljenja, saj s tem ohranjamo njihov vid in posledično boljšo kakovost življenja. Age-related macular degeneration (AMD) is a common disease that gradually destroys central vision and is one of the leading causes of low vision and blindness in the world. The purpose of the study was to determine how wet ADM affects daily life and how regular check-ups and treatment with intravitreal application of a vascular endothelial growth factor (VEGF) inhibitor affect the quality of life in these patients. Research methods: Descriptive and quantitative method of work were used in the research. Data were obtained using a structured questionnaire with 24 questions. We surveyed 100 patients with wet ADM, i.e. 50 with unilateral and 50 with bilateral visual impairment, who are treated on an outpatient basis in one of the university clinical centers in Slovenia. Results: 54 % of patients live with a partner and 27 % independently. Because of visual difficulties, 19 % of patients are dependent on the assistance of others in their daily lives. 36 % of patients need assistance with reading, 56 % cannot drive a car, 18 % do not know their way in an unfamiliar environment. Patients with bilateral visual impairment have more problems in their daily lives. Frequent check-ups and treatment do not pose a major burden to patients. As many as 73 % of respondents feel fear of complete vision loss, despite the fact that 58 % observe vision stabilization with the help of anti-VEGF therapy. Discussion and conclusion: Despite poorer visual function and problems, patients with ADM are more likely to maintain independence in their daily lives. We need to offer them the necessary help and support, as this enables them to have a better quality of life. It is important that patients are aware of the importance of check-ups and treatments, as this preserves their vision and consequently a better quality of life. strukturiran vprašalnik vlažna SDM enostranska SDM obojestranska SDM zdravljenje SDM anti-VEGF structured questionnaire wet ADM unilateral ADM bilateral ADM ADM treatment anti-VEGF true false false [N. Bezjak] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2020-07-09 11:35:17 2020-10-30 14:05:32 2022-08-09 13:59:51 2020-10-31 03:16:37 2020 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 617.736(043.2) 34115587 URN:SI:UM:DK:53BSI7C5 VS_Bezjak_Nina_2020.pdf VS_Bezjak_Nina_2020.pdf 1 F1C39360E6005D04D68F89A49C63D124 0fe850d75b7a2ab98ff25a675859d5f5c5294c15c8f305b39a877828dcf60d75 e7a632f5-7c11-11eb-bb7a-00155d0001ca 20.500.12556/dkum/095d9698-70e0-4dc6-b3a8-ba20d81a97b5 https://dk.um.si/Dokument.php?lang=slv&id=146521 Fakulteta za zdravstvene vede 0 0 0