20.500.12556/DKUM-79405 Soočanje staršev z otroško hospitalizacijo in s skrbmi, ki nastanejo s stroški Addressing the parents of child hospitalization and concerns arising from the cost Uvod: Nekatere dolgotrajne bolezni niso popolnoma ozdravljive, število otrok s temi boleznimi se vsako leto povečuje, kar vodi v zmanjšano kvaliteto njihovega življenja. Starši se velikokrat soočajo z zdravstvenimi in z nezdravstvenimi stroški, ki jim povzročajo finančno negotovost. Namen je, raziskati soočanje staršev s hospitalizacijo otrok in s skrbmi s stroški, ki nastanejo med hospitalizacijo otrok. Metode: Uporabili smo kvantitativno raziskovanje z metodo anketiranja in kvalitativno raziskovanje z intervjujem. Raziskovalni vzorec so bili starši kronično bolnih otrok. Podatke smo s pomočjo programa Microsoft Office Word in Excel analizirali, obdelali z opisno statistiko ter jih opisno in v tabelah predstavili. Rezultati: Ugotovili smo, da so najpogostejši stroški prav nezdravstveni stroški, ki staršem obolelih otrok s pogostejšimi hospitalizacijami povzročajo večje stroške in jih finančno prizadenejo. Največ staršev otrok je sicer informacije o pravicah iz Zakona o zdravstvenem varstvu z zdravstvenim zavarovanjem in Zakona o starševskem varstvu in družinskih prejemnikih ter o dobrodelnih organizacijah pridobilo s strani drugih zdravstvenih delavcev. Razprava in sklep: Vloga medicinske sestre je pomembna pri prilagajanju otrok in staršev na kronično bolezen. Vzpostavi mora zaupanje, jasno komunicirati, se zavedati svoje odgovornosti pri delu ter stalno nadgrajevati svoje strokovno znanje. V prihodnje bi bilo smiselno usmeriti raziskovanje o nezdravstvenih stroških, saj ti stroški najbolj finančno bremenijo starše. Introduction: Some long-term illnesses are not completely curable, the number of children with these illnesses is increasing every year, leading to a reduced quality of their lives. The aim is to explore parent’s confrontation with the hospitalization of children and the concerns related to that arise during the hospitalization of children. Methods: Thesis was based on quantitative research with questionnaire method and qualitative research with an interview. Research pattern consisted of chronically sick children’s parents. Data was analysed with programs Microsoft Office Word and Excel, then processed with descriptive statistics and presented in tables and descriptively. Results: We discovered that non-health related costs are the ones that present the biggest costs for parents with children that are frequently hospitalized and leave them financially impaired. Majority of parents obtained information about their rights covered by Health Care and Health Insurance Act, Parental Protection and Family Benefits Act and humanitarian organizations from health workers. Discussion and conclusion: A nurse have an important role in adjusting children and parents to a chronical disease. They must establish trust, communicate clearly, be aware of their work responsibly and constantly upgrade their expert knowledge. In the future, it would make sense to focus research on non-health related costs, as they are the ones that present the most considerable financial burden for parents. osveščenost staršev dolgotrajno bolan otrok bolnišnično bivanje izdatki tekom zdravljenja awareness of parents long-term sick child hospitalization costs during medical treatment true false false [V. Rečnik] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2021-06-24 13:50:27 2021-08-17 15:10:41 2022-08-09 20:31:36 0000-00-00 00:00:00 2021 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616-053.2(043.2) 73248003 VS_Recnik_Valentina_2021.pdf VS_Recnik_Valentina_2021.pdf 1 832835647E7608AA88E0C4A5D0D960C3 e79d93c5fde25c94b8f30523c17bf983ec7fbe54e98bf3a2ba4653b66cf73f62 b2b83b2e-e53b-11eb-8568-00155d581298 20.500.12556/dkum/a97f7d35-b891-4d3a-8933-fd3180a56e1f https://dk.um.si/Dokument.php?lang=slv&id=151273 Fakulteta za zdravstvene vede 0 0 0