20.500.12556/DKUM-86114 Vključevanje odraslih z redkimi oblikami raka (sarkoma) v družbo magistrsko delo The inclusion of adults with rare types of cancer (sarcoma) in society Socialna inkluzija je ključna za pravično in enakopravno družbo. V sedanjem času pa se soočamo z izzivi, ki otežujejo to inkluzijo. Eden od teh izzivov je redek rak, imenovan sarkom, ki predstavlja manj kot odstotek vseh malignih tumorjev pri odraslih. Pogosto se spregleda in bolniki se soočajo s pomanjkanjem ozaveščenosti o tej bolezni. Diskriminacija in stigmatizacija bolnikov s sarkomom otežujeta njihov dostop do ustreznejše zdravstvene oskrbe, podpore in zaposlitve. Za dosego socialne inkluzije sta ključna ozaveščanje in izobraževanje, s katerima se spodbuja razumevanje in sočutje do teh ljudi. Pomembno je zagotoviti ustrezne vire in storitve za bolnike, da lahko živijo polno in neodvisno življenje. Z ozaveščanjem je treba spodbujati zgodnje odkrivanje raka in izboljšati dostop do specializirane zdravstvene oskrbe ter podpirati raziskave in inovacije na tem področju. Namen naše raziskave je predstaviti subjektivno zaznavo soočanja petih bolnikov z redko boleznijo (obliko raka sarkoma), proces soočanja z boleznijo s poudarkom na zaznavanju njihove vključenosti v družbo. Intervjuvanci so izrazili skupno mnenje, da je potrebno prisluhniti njihovim potrebam in težavam ter sprejeti ukrepe za izboljšanje njihovega dostojanstva in kakovosti življenja. Prav tako se strinjajo, da je o tej temi treba več govoriti, saj lahko to prispeva k izboljšanju položaja tudi drugih bolnikov s to boleznijo. Social inclusion is vital to a fair and equal society. Today we face, however, challenges that hinder this inclusion. One such challenge is rare cancer called sarcoma, representing less than one per cent of all malignant tumours in adults. It is often overlooked, and patients lack awareness of the disease. Discrimination and stigmatization of sarcoma patients hinder their access to more appropriate medical care, support and employment. Raising awareness and education are crucial for reaching social inclusion so that we can encourage understanding and compassion towards patients. It is important to provide appropriate resources and services for patients to live a full and independent life. By raising awareness, we should encourage early cancer detection, facilitate access to specialized medical care, and support research and innovations in this field. Our research aims to present the subjective perception of coping of five patients with a rare (a type of sarcoma cancer) disease and their process of facing the disease, emphasizing the perception of their inclusion into society. Interviewees unanimously agreed that we should be sensitive to their needs and problems and take measures for their dignity and life-quality improvement. They also agree we should talk more about this topic, for discussion can help to improve their situation. socialna inkluzija redek rak sarkom diskriminacija ozaveščanje social inclusion rare cancer sarcoma discrimination raising awareness true true false [G. Bezjak] Slovenski jezik Angleški jezik Magistrsko delo/naloga 2023-10-09 23:06:39 2023-10-26 14:03:18 2023-10-27 03:12:50 0000-00-00 00:00:00 2023 0 Maribor 0 Maribor 1 spletni vir (1 datoteka PDF (XI, 165 str.)) 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 316.6:616-006.04(043.2) 170065667 MAG_Bezjak_Gabi_2023.pdf MAG_Bezjak_Gabi_2023.pdf 1 248B9B3E255440A7AEF5C765C522C027 45ab047165f3473296a5e92597c8bfcfdc6d37e7e94edba286fc557453aef69f 2e7117b9-6929-11ee-a17d-00155d000105 https://dk.um.si/Dokument.php?lang=slv&id=173535 Pedagoška fakulteta 0 0 0