20.500.12556/DKUM-90869 Mapping users' experience of a family history and genetic risk algorithm tool in primary care Introduction: The development of a family history (FH) questionnaire (FHQ) provides an insight into a patient's familiarity of a trait and helps to identify individuals at increased risk of disease. A critical aspect of developing a new tool is exploring users' experience. Objective: The objective of this study was to examine users' experience, obstacles and challenges, and their views and concerns in the applicability of a new tool for determining genetic risk in Slovenia's primary care. Methods: We used a qualitative approach. The participants completed a risk assessment software questionnaire that calculates users' likelihood of developing familial diseases. Audio-taped semi-structured telephone interviews were conducted to evaluate their experience. There were 21 participants, and analyses using the constant comparative method were employed. Results: We identified 3 main themes: obstacles/key issues, suggestions for improvements, and coping. The participants were poorly satisfied with the clarity of instructions, technical usability problems, and issues with the entry of relatives' data. They expressed satisfaction with some of the characteristics of the FHQ (e.g., straightforward and friendly format, easy entry, and comprehension). They suggested simpler language, that the disease risk should be targeted toward the disease, that the FHQ should include patient-specific recommendations, and that it should be part of the electronic medical records. When discussing what would they do with the results of the FHQ, the participants used different coping strategies: active (e.g., seeking information) or passive (e.g., avoidance). Discussion/conclusion: User experience was shown to be a synthesis of obstacles, overcoming them with suggestions for improvements, and exploration of various coping mechanisms that may emerge from dealing with the stressor of "being at risk." primary healthcare family history qualitative methodology primarno zdravstveno varstvo družinska zgodovina kvalitativna metodologija true false true S. Karger Angleški jezik Slovenski jezik Znanstveno delo 2024-10-01 11:03:50 2024-10-01 11:59:12 2024-10-02 03:13:30 0000-00-00 00:00:00 2022 0 0 Str. 42-51 Št. 1/2 Letn. 25 2022 0000-00-00 Zaloznikova Objavljeno NiDoloceno 2021-03-04 2021-06-22 2022-08-31 614 76727555 10.1159/000518086 1662-4246 Mirosevic-2021-Mapping_Users__Experience_of_a.pdf Mirosevic-2021-Mapping_Users__Experience_of_a.pdf 1 A3246C1F892EEAFC870E46F44EE30788 44f38c243bb5e571fb731059dfbf4aa216b6ba42f80c07408b1238bca65cb84c 39469bd3-7fd6-11ef-a73d-00155d000105 https://dk.um.si/Dokument.php?lang=slv&id=186090 https://doi.org/10.1159/000518086 0 16d8859f-7fd4-11ef-a73d-00155d000105 https://dk.um.si/Dokument.php?lang=slv&id=186089 Medicinska fakulteta 0 0 0