20.500.12556/DKUM-94386 Podpora neformalnim oskrbovalcem pri oskrbi svojca v terminalni fazi Supporting informal carers in the care of relative in the terminal phase Uvod: Neformalni oskrbovalci imajo ključno vlogo pri oskrbi svojca v terminalni fazi. Njihova naloga pogosto vključuje osnovno pomoč, čustveno podporo, odločanje in spremljanje simptomov bolezni. Oskrbovalci se pogosto srečujejo z visoko stopnjo stresa, izgorelosti in občutkom nepodprtosti, kar pa lahko negativno vpliva na njihovo duševno in telesno zdravje ter kakovost oskrbe. Metode: Izveden je bil pregled literature. Uporabljena je bila iskalna strategija z določenimi ključnimi besedami in kriteriji za vključitev in izključitev člankov. Pregledane so bile podatkovne baze PubMed, CINAHL, SAGE in Web of Science; sledili smo smernicam PRISMA ter uporabili narativno sintezo. Rezultati: V analizo in sintezo je bilo vključenih 16 člankov. Najpogostejše izražene potrebe se nanašajo predvsem na ustrezno informiranost o bolezni, poteku umiranja in načinih nudenja oskrbe. Pomembna je tudi podpora, in sicer čustvena, fizična, duhovna, finančna, komunikacijska in administrativna podpora. Ustrezna in strukturirana podpora pomembno izboljša počutje oskrbovalcev ter vpliva na boljšo kakovost oskrbe. Razprava in zaključek: Neformalni oskrbovalci potrebujejo celostno podporo, ki pa je še vedno pomanjkljiva in preveč usmerjena samo na pacienta, medtem ko so potrebe oskrbovalcev premalo poznane ali pozabljene. Priporočljivo je raziskati še več izkušenj in potreb oskrbovalcev glede na kulturne, socialne in ekonomske dejavnike, saj se ti pomembno odražajo v zaznavanju bremena in dostopu do pomoči. Introduction: Informal caregivers support relatives during the terminal phase, providing basic assistance, emotional support, and symptom monitoring. However, they often face high stress, burnout, and feelings of being unsupported, which can harm their mental and physical health as well as the quality of care they provide. Methods: A literature review used a targeted search strategy with specific keywords and criteria for including or excluding articles. We reviewed the PubMed, CINAHL, SAGE, and Web of Science databases, following PRISMA guidelines and using narrative synthesis for analysis. Results: Sixteen articles were analysed, highlighting that caregivers primarily need adequate information about the disease, the dying process, and care methods. Emotional, physical, spiritual, financial, communication, and administrative support are also crucial. Structured support enhances caregiver well-being and improves care quality. Discussion and conclusion: Informal caregivers need comprehensive support, which is still lacking and too focused on the patient, while the needs of caregivers are insufficiently known or forgotten. It is advisable to explore more experiences and needs of caregivers, taking into account cultural, social, and economic factors, as these are significantly reflected in the perception of burden and access to assistance. paliativna oskrba terminalna faza neformalni oskrbovalci podpora potrebe palliative care terminal phase informal caregivers support needs true true false [N. Krempl] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2025-08-14 17:20:56 2025-10-24 14:35:14 2025-12-19 22:10:11 0000-00-00 00:00:00 2025 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 364-47:616-036.8-083(043.2) 253513475 VS_Krempl_Nika_2025.pdf VS_Krempl_Nika_2025.pdf 1 C7851791DC551513862442DC748D1CB6 32832d18c695da80a361d64ea85c43ed5a77c66851ca08a3224c3ac9e256b6e6 e3d09c8a-884a-11f0-96a7-00155d000105 https://dk.um.si/Dokument.php?lang=slv&id=197407 Fakulteta za zdravstvene vede 0 0 0