20.500.12556/DKUM-95920 Izkušnje svojcev in skrbnikov z oskrbo svojca po travmatski poškodbi glave in možganov Experiences of parents and caregivers with relative's care after a traumatic head and brain injury Uvod: Travmatska poškodba možganov je pomemben zdravstveno-socialni problem, ki močno zaznamuje tako paciente kot tudi njegove svojce in skrbnike. Namen raziskovanja je bil preučiti izkušnje svojcev pacientov po travmatski poškodbi možganov, s poudarkom na njihovih izzivih, potrebah in vlogi pri okrevanju pacientov. Metode: Izveden je bil pregled znanstvene literature v bazah MEDLINE, CINAHL in Web of Science. Vključene so bile kvalitativne raziskave, objavljene v angleščini, ki preučujejo izkušnje svojcev odraslih pacientov po travmatski poškodbi možganov. Kritična ocena je bila opravljena s pomočjo orodja Critical Appraisal Skills Programme, podatki pa so bili analizirani s tematsko sintezo. Rezultati: Skupno smo identificirali 1549 zadetkov. V končno analizo je bilo vključenih deset raziskav. Svojci so poročali o preobremenjenosti, socialni izolaciji in o težavah pri usklajevanju skrbstvene vloge z vsakdanjimi obveznostmi. Izpostavili so pomanjkanje informacij, podpore in vključevanja v odločitve o zdravljenju. Kljub težavam so aktivno prispevali k okrevanju pacientov, zlasti z motivacijo, sodelovanjem v rehabilitaciji ter prilagajanjem družinske dinamike. Razprava: Analiza je pokazala vrzel v sistemski podpori svojcem, ki bi jo lahko zapolnili s strukturiranimi podpornimi programi, večjo vključenostjo svojcev v obravnavo ter razvojem intervencij, ki krepijo njihovo odpornost. Zaključek: Vloga svojcev pri oskrbi pacientov s travmatsko poškodbo možganov je nepogrešljiva, zato je nujno razviti celostne intervencije za zmanjšanje njihovega bremena in izboljšanje psihosocialne podpore. Introduction: Traumatic brain injury is is an important health and social problem that significantly affects both patients and their relatives and caregivers. The aim of this study was to explore the experiences of relatives of patients with a traumatic brain injury, with a focus on their challenges, needs, and role in patient recovery. Methods: A review of the scientific literature was conducted in the MEDLINE, CINAHL, and Web of Science databases. Included were qualitative studies published in English that examined the experiences of relatives of adult patients with a traumatic brain injury. Critical appraisal was performed using the Critical Appraisal Skills Programme, and data were analyzed through thematic synthesis. Results: A total of 1,549 records were identified, of which ten studies were included in the final analysis. Relatives reported feelings of burden, social isolation, and difficulties in balancing caregiving responsibilities with daily obligations. They highlighted a lack of information, support, and involvement in treatment decisions. Despite these challenges, relatives actively contributed to patient recovery, particularly through motivation, participation in rehabilitation, and adaptation of family dynamics. Discussion: The analysis revealed gaps in systemic support for family members, which could be addressed by structured support programs, greater involvement of relatives in care, and the development of interventions that strengthen resilience. Conclusion: The role of relatives in caring for patients with a traumatic brain injury is indispensable. Comprehensive interventions are urgently needed to reduce caregiver burden and improve psychosocial support. pridobljena poškodba možganov psihosocialne potrebe breme oskrbe acquired brain injury psychosocial needs caregiver burden true true false [A. Smajlović] Slovenski jezik Angleški jezik Magistrsko delo/naloga 2025-11-10 17:33:26 2026-01-05 18:24:18 2026-01-06 03:18:35 0000-00-00 00:00:00 2025 0 Maribor 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616.831-001.34:649-056.24(043.2) 261862659 MAG_Smajlovic_Aljana_2025.pdf MAG_Smajlovic_Aljana_2025.pdf 1 FC00D054BA114EF6DEEADB516A736CD8 d1f772d6caaf43c3ac01c93a6b45462e4eea2c2f08a1649cf3311a2698a8b682 f786c421-d4d4-11f0-b0df-00155d000105 https://dk.um.si/Dokument.php?lang=slv&id=201230 Fakulteta za zdravstvene vede 0 0 0