20.500.12556/DKUM-98783 Doživljanje, perspektive in izzivi družin z otroki z motnjo avtističnega spektra (MAS) magistrsko delo Experience, perspectives and challenges in families with autistic spectrum disorder (asd) Namen magistrske naloge je bil raziskati doživljanje, perspektive in izzive družin z otroki z MAS. Pri tem sem želela pridobiti vpogled v njihove izkušnje ob soočanju z otrokovo diagnozo, vsakodnevnimi izzivi ter podporo sistema in širšega okolja, hkrati pa raziskati njihove želje in skrbi glede otrokove prihodnosti. V teoretičnem delu so predstavljene značilnosti družine, njene funkcije in vloga v sodobni družbi, motnja avtističnega spektra, njene značilnosti, načini diagnosticiranja in obravnave ter vpliv otroka z MAS na družinsko življenje. Empirični del je temeljil na kvalitativni raziskavi. Podatke sem zbrala s polstrukturiranimi intervjuji, v katerih je sodelovalo osem staršev iz štirih družin z otrokom z MAS. Zbrane podatke sem analizirala s tematsko analizo. Ugotovitve raziskave kažejo, da je otrokova diagnoza vplivala na družinsko dinamiko, partnerski odnos, sorojence ter duševno zdravje staršev. Kot najpogostejše izzive so starši izpostavili organizacijo vsakdana, dostop do strokovne pomoči, nepredvidljivost otrokovega vedenja, občutke nerazumevanja v okolju in skrbi glede otrokove prihodnosti. Kot najpomembnejše vire podpore so navedli partnerja, širšo družino, strokovne delavce ter druge starše otrok z MAS. Raziskava poudarja pomen celostne in pravočasne podpore družinam ter večje ozaveščenosti družbe o potrebah otrok z MAS in njihovih družin. The aim of the master's thesis was to explore the experience, perspectives, and challenges of families raising children with autistic spectrum disorder (ASD) and to gain insight into their experiences of coping with the diagnosis, everyday challenges, and their experience with the support provided by professional services and the wider social environment. Particular attention was also given to parents' hopes and concerns regarding their child's future. The theoretical part presents the characteristics of the family, its functions and role in contemporary society, as well as autism spectrum disorder, its characteristics, diagnostic procedures, intervention approaches, and the impact of raising a child with ASD on family life. The empirical part is based on qualitative research. Data were collected through semi-structured interviews with eight parents from four families raising a child with ASD. The data were analysed using thematic analysis. The findings indicate that the child's diagnosis affected family dynamics, partner relationships, siblings, and the mental well-being of the parents. The most frequently reported challenges included organising everyday life, accessing professional support, coping with the unpredictability of the child's behaviour, experiencing a lack of understanding from others, and concerns about the child's future. The most important sources of support identified by parents were their partners, extended family members, professionals, and other parents of children with ASD. The study highlights the importance of comprehensive and timely support to families, as well as raising public awareness of the needs of children with ASD and their families. motnja avtističnega spektra družina starši kvalitativna raziskava podpora autistic spectrum disorder family parents qualitative research support true true false T. Petelinšek Slovenski jezik Angleški jezik Magistrsko delo/naloga 2026-07-07 21:07:08 2026-08-21 09:55:25 2026-08-22 03:06:30 0000-00-00 00:00:00 2026 0 Maribor 0 Maribor 1 spletni vir (1 datoteka PDF (VIII, 127 str.)) 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 316.6:616.896-053.81(043.2) 288419587 MAG_Petelinsek_Tina_2026.pdf MAG_Petelinsek_Tina_2026.pdf 1 BD1659355C20C735B57515914D1060A2 e9fab3a88dc5b215e761809286199793df11fc2fd244c4f6828891797f5f2157 8e37d18c-7a39-11f1-9e97-00155d580e34 https://dk.um.si/Dokument.php?lang=slv&id=208033 Pedagoška fakulteta 0 0 0