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Title:Doživljanje staršev otrok, obolelih za rakom: socialne predstave o bolezni
Authors:ID Zemljarič, Ives (Author)
ID Poštuvan, Vita (Mentor) More about this mentor... New window
ID Zadravec Zaletel, Lorna (Comentor)
Files:.pdf MAG_Zemljaric_Ives_2020.pdf (2,18 MB)
MD5: DCBB58AE99FD8F73ECBE93EE65451C59
PID: 20.500.12556/dkum/0b56eaa5-2a71-402b-bef2-8a9c277de1f5
 
Language:Slovenian
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:FF - Faculty of Arts
Abstract:Kadar za rakom zboli otrok ali mladostnik, je bolezen še posebej obremenjujoča za starša; negotovost glede uspeha zdravljenja pa vztraja še leta po diagnozi. Dosedanje raziskave na tem področju se večinoma osredotočajo na posameznika ali družino, medtem ko zanemarjajo socialno-psihološki vidik, kot so socialne predstave o bolezni in nekatera druga z zdravljenjem povezana prepričanja. Namen magistrskega dela je raziskati, kako je izkušnja zdravljenja raka oblikovala predstavo staršev obolelih otrok o bolezni ter kako je oblikovala doživljanje sebe in vsakdanje funkcioniranje po koncu zdravljenja. Cilj raziskave je dobiti vpogled v doživljanje bolezni in tako razumeti, kako se starši z njo soočajo. Izbrali smo kvalitativni pristop, in sicer metodo interpretativne fenomenološke analize, ki analizo usmerja k celostnemu razumevanju doživete izkušnje. Napravili smo 10 polstrukturiranih intervjujev s starši, katerih otroci so se v mladostništvu zdravili zaradi raka. Po koncu kodiranja smo opredelili 76 kod, ki smo jih razvrstili v 12 kategorij, in opredelili štiri nadredne teme: Bolezen rak kot grožnja, Boj za preživetje, Opora starša pri obvladovanju bolezni in Sprememba kot proces, ki smo jih na koncu integrirali s preteklimi spoznanji. Predvidevamo, da bomo s celostnim razumevanjem izkušnje staršev za rakom obolelih otrok prispevali k oblikovanju ustreznih preventivnih ukrepov za ohranjanje psihičnega blagostanja tudi več let po koncu zdravljenja.
Keywords:starši, rak pri otrocih in mladostnikih, socialne predstave o bolezni, interpretativna fenomenološka analiza, polstrukturirani intervju
Place of publishing:Maribor
Publisher:[I. Zemljarič]
Year of publishing:2020
PID:20.500.12556/DKUM-75694 New window
UDC:159.942-055.52:616-006-053.2(043.2)
COBISS.SI-ID:25126664 New window
NUK URN:URN:SI:UM:DK:SY26JYKD
Publication date in DKUM:19.02.2020
Views:1708
Downloads:507
Metadata:XML DC-XML DC-RDF
Categories:FF
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Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:16.01.2020

Secondary language

Language:English
Title:A view from parents of children with cancer: illness representations
Abstract:When a child is diagnosed with cancer, the following treatment can be an especially heavy burden for the parents. The uncertainty about the success of the treatment can persist even years after the diagnosis. Studies in this field are often focused on the individual or family process while often neglecting the socio-psychological aspect, such as illness representations and other beliefs related to the cancer treatment process. The purpose of this master’s thesis is to explore how the experience of the child having cancer can affect parents' illness representations and to understand how this is involved in their self-perception and everyday functioning post-treatment. The main research goal is to gain insight into how parents experience and cope with the illness. The study was conducted with a qualitative approach, namely with the Interpretative phenomenological analysis, which is directed towards a fuller understanding of the parents' experience. We conducted 10 semi-structured interviews with parents whose children have received cancer treatment during their adolescence period. The coding process yielded 76 codes which we distributed among 12 categories and extracted 4 main themes: The Threat of Cancer, Fight for Survival, Parental Support in Dealing with the Illness, and The Process of Change, which we present in relation with previous studies. We assume that a more comprehensive understanding of the parents' experience will give us new insights that are important for future interventions aimed at improving psychological well-being years after the treatment.
Keywords:parents, pediatric cancer, illness representations, Interpretative phenomenological analysis, semi-structured interview


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