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Title:Kakovost življenja preživelih odraslih po raku v otroštvu
Authors:ID Mlakar, Ana (Author)
ID Nerat, Jasmina (Mentor) More about this mentor... New window
Files:.pdf VS_Mlakar_Ana_2022.pdf (1,02 MB)
MD5: 869E9E4F95E60FEF6CB49A19D4F9D797
 
Language:Slovenian
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:FZV - Faculty of Health Sciences
Abstract:Uvod: Znano je, da diagnoza rak in zdravljenje v obdobju otroštva pustita vsakemu posamezniku posledice, tako na telesnem področju kot tudi na področju duševnega funkcioniranja. Namen zaključnega dela je raziskati kakovost življenja preživelih odraslih po raku v otroštvu. Metode: Izvedli smo kvalitativno raziskavo, v kateri je sodelovalo 8 preživelih odraslih po prebolelem raku v otroštvu. Podatke smo zbrali z uporabo delno strukturiranega intervjuja in terenskih zapisov. Zbrane podatke smo analizirali s pomočjo kvalitativne metode analize besedila. Rezultati: Na podlagi analize intervjujev smo identificirali glavno kategorijo Različna področja kakovosti življenja preživelih odraslih po prebolelem raku v otroštvu, katera je sestavljena iz šestih kategorij in enaindvajsetih podkategorij. Preživeli odrasli imajo zaradi poznih posledic zdravljenja več izzivov na področju fizičnega zdravja (brazgotine, recidivi, pozni stranski učinki zdravljenja) in duševnega zdravja (slaba samopodoba, občutki manjvrednosti in nesprejemanja, podoživljanje bolezni, močne čustvene reakcije) ter na področju izobraževanja in kariere (težave pri zaposlitvi, nerazumevanje, negativno vrednotenje, samodokazovanje). Zadovoljni so s kakovostjo življenja na socialnem področju (podporni in poglobljeni odnosi), skrbijo za svoje zdravje (zdrav življenjski slog) in življenje doživljajo kot dragoceno. Razprava in sklep: Kakovost življenja odraslih, ki so preboleli raka v otroštvu, je še dokaj neraziskana. Ugotovitve zaključnega dela sovpadajo z ugotovitvami drugih avtorjev, ki so izvajali raziskave na sorodno tematiko. Naša priporočila za prihodnje raziskovanje so obširnejše raziskave ali primerjave več starostnih skupin, vključitev različnih diagnoz raka ter načinov in posledic zdravljenja, ki bi lahko zajemalo tudi podporne skupine, in v povezavi z zgoraj omenjenimi dejavniki nova odkritja stopnje kakovosti življenja prebolelih.
Keywords:otroški rak, ozdravljeni od raka, posledice zdravljenja, kvaliteta življenja
Place of publishing:Maribor
Publisher:[A. Mlakar]
Year of publishing:2022
PID:20.500.12556/DKUM-82377 New window
UDC:304.35-053.8:616-006(043.2)
COBISS.SI-ID:124964611 New window
Publication date in DKUM:18.10.2022
Views:860
Downloads:94
Metadata:XML DC-XML DC-RDF
Categories:FZV
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Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:17.08.2022

Secondary language

Language:English
Title:Quality of life of adult survivors of childhood cancer
Abstract:Introduction: It is well known that a diagnosis of cancer and its treatment during childhood leaves a lasting impact on each individual's physical and mental functioning. The aim of this thesis is to investigate the quality of life of adult survivors of childhood cancer. Methods: We conducted a qualitative study involving 8 adult survivors of childhood cancer. The data was collected using semi-structured interviews and field notes. The data collected was analysed using a qualitative text analysis method. Results: Based on the analysis of the interviews, we identified a main category, »Different domains of quality of life in adult survivors of childhood cancer«, which consists of six categories and twenty-one subcategories. Adult survivors face more challenges in connection to their physical health (scarring, relapses, later side effects of treatment) and mental health (poor self-image, feelings of inferiority and non-acceptance, reliving the illness, strong emotional reactions), education and career (employment difficulties, misunderstanding, negative evaluation, self-evaluation, self-efficacy) due to the postponed effects of treatment. They are satisfied with their social quality of life (supportive and deep relationships), take care of their health (healthy lifestyle) and generally value life as very precious. Discussion and conclusion: The quality of life of adults who have experienced childhood cancer is still largely unexplored. The findings of this thesis are in line with those of other authors who have carried out research on related topics. Our recommendations for future research include larger surveys or comparisons across different age groups, including different cancer diagnoses and treatment modalities as well as outcomes, which could also include support groups, and, in relation to the factors above, new discoveries on the quality of life of cancer survivors.
Keywords:childhood cancer, cancer survivors, treatment outcomes, quality of life


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