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Title:Digital transformation of health : towards the European health data space
Authors:ID Proso, Maja (Author)
Files:URL https://journals.um.si/index.php/medicine/article/view/4248
 
.pdf cervek_m,+7_proso_(1).pdf (324,01 KB)
MD5: 1EB18DD4A80FDA38DB64DAEFF15EE084
 
Language:English
Work type:Unknown
Typology:1.01 - Original Scientific Article
Organization:PF - Faculty of Law
Abstract:The European space for health data (EHDS) is the first European proposal for the arrangement of a specific area common to the entire EU. The main goals are enabling citizens to control and use their own health data, nationally and throughout the EU (primary use of health data), cross-border exchange of health data and building a single market for digital health services. A further goal is to create an effective legal framework for the use of health data for research and innovation purposes (secondary use of health data), as well as the establishment of electronic health records and the development of a health data management system. In the paper author presents the concept of health data privacy in digital age and analyses the current health data protection legal framework. The paper examines the provisions of the EHDS Proposal, critically analyising the proposed terms of primary and secondary use of health data, as well as it's rules on data portability and interoperability.
Keywords:data protection, European space for health data, primary use of health data, secondary use of health data
Publication date:01.04.2024
Year of publishing:2024
Number of pages:str. 130-169
Numbering:Vol. 17, no. 1
PID:20.500.12556/DKUM-91061 New window
UDC:342.7
ISSN on article:2463-7955
COBISS.SI-ID:211853059 New window
DOI:10.18690/mls.17.1.153-170.2024 New window
Publication date in DKUM:28.08.2025
Views:172
Downloads:4
Metadata:XML DC-XML DC-RDF
Categories:Misc.
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Record is a part of a journal

Title:Medicine, law & society
Publisher:Pravna fakulteta, Pravna fakulteta, University of Maribor Press
ISSN:2463-7955
COBISS.SI-ID:281851136 New window

Secondary language

Language:English
Title:Digital transformation of health: towards the European health data space
Abstract:Evropski prostor za zdravstvene podatke (EHDS) je prvi evropski predlog za ureditev specifičnega področja, skupnega celotni EU. Glavni cilji so omogočiti državljanom nadzor nad lastnimi zdravstvenimi podatki ter njihovo uporabo na nacionalni ravni in po vsej EU (primarna uporaba zdravstvenih podatkov), čezmejna izmenjava zdravstvenih podatkov in izgradnja enotnega trga za digitalne zdravstvene storitve. Nadaljnji cilj je ustvariti učinkovit pravni okvir za uporabo zdravstvenih podatkov v raziskovalne in inovacijske namene (sekundarna uporaba zdravstvenih podatkov) ter vzpostavitev elektronskih zdravstvenih zapisov in razvoj sistema za upravljanje z zdravstvenimi podatki. V članku je predstavljen koncept zasebnosti zdravstvenih podatkov v digitalni dobi, nadalje pa prispevek analizira trenutni pravni okvir za zaščito zdravstvenih podatkov. Članek preučuje določbe Predloga EHDS, kritično analizira predlagane pogoje za primarno in sekundarno uporabo zdravstvenih podatkov, kot tudi pravila o prenosljivosti podatkov in interoperabilnosti.


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