| Title: | Health related QoL in celiac disease patients in Slovenia |
|---|
| Authors: | ID Turk, Eva (Author)
ID Mičetić-Turk, Dušanka (Author)
ID Šikić Pogačar, Maja (Author)
ID Tapajner, Alojz (Author)
ID Vlaisavljević, Veljko (Author)
ID Prevolnik Rupel, Valentina (Author) |
|---|
| Files: |  Turk-2020-Health_related_QoL_in_celiac_disease.pdf (676,53 KB)
MD5: 1C6BBECC1FD3EF63140120AF9EFAE7AA
 https://doi.org/10.1186/s12955-020-01612-9
|
|---|
| Language: | English |
|---|
| Work type: | Scientific work |
|---|
| Typology: | 1.01 - Original Scientific Article |
|---|
| Organization: | MF - Faculty of Medicine
|
|---|
| Abstract: | Background: Measurements of health-related quality of life (HRQoL) among celiac disease patients using a validated questionnaire have been lacking in Slovenia. This study aims to measure HRQoL in celiac disease (CD) patients using EQ-5D internationally validated questionnaire and comparing it to the HRQoL of the general population.
Methods: In this cross sectional analysis all of the approximately 2000 members of the Slovenian Celiac Society were invited to take part. We used a 3 step approach for recruitment and data collection. HRQoL was evaluated through the EuroQoL EQ-5D-5L instrument (Slovenian version) and analysed using the ordinal logistic regression.
Results: Out of 321 patients who gave their consent, 247 celiac patients were included in the study (77%). 68% of the participants were female and 53% of them lived in an urban setting. Most patients originated from North-East Slovenia, whereas approximately 30% of patients came from other Slovenian regions. The EQ-5D respondents’ self-reported health status at the time of the study show that most patients have slight or no problems when living with CD. The duration of the gluten-free diet, academic education and rare (< 1 × year) doctor visits affect EQ-5D in a positive way. On the other hand, higher age and chronic rheumatic disease were negatively associated with EQ-5D also when compared to the general population.
Conclusion: This is the first Slovenian study to measure the HRQoL of Slovenian CD patients, using an internationally validated questionnaire. The results of our study show that HRQoL is slightly impaired among Slovenian patients with CD. Clinical characteristics are better determinants of their HRQoL than socio-demographic factors. Greater awareness of the impact of CD on patients’ HRQoL would improve the holistic management of CD patients. |
|---|
| Keywords: | health, quality of life, HRQoL, celiac disease, EQ‑5D, valuation, measurement, Slovenia |
|---|
| Publication status: | Published |
|---|
| Publication version: | Version of Record |
|---|
| Submitted for review: | 30.05.2020 |
|---|
| Article acceptance date: | 27.10.2020 |
|---|
| Publication date: | 04.11.2020 |
|---|
| Publisher: | BioMed Central |
|---|
| Year of publishing: | 2020 |
|---|
| Number of pages: | Str. 1-6 |
|---|
| Numbering: | Letn. 18, št. članka 356 |
|---|
| PID: | 20.500.12556/DKUM-91466  |
|---|
| UDC: | 614.2 |
|---|
| ISSN on article: | 1477-7525 |
|---|
| COBISS.SI-ID: | 36055811 |
|---|
| DOI: | 10.1186/s12955-020-01612-9 |
|---|
| Publication date in DKUM: | 06.01.2025 |
|---|
| Views: | 171 |
|---|
| Downloads: | 15 |
|---|
| Metadata: |    |
|---|
| Categories: | Misc.
|
|---|
|
:
|
Copy citation |
|---|
| | | | Average score: | (0 votes) |
|---|
| Your score: | Voting is allowed only for logged in users. |
|---|
| Share: |  |
|---|
Hover the mouse pointer over a document title to show the abstract or click
on the title to get all document metadata. |
