Family members’ experiences of everyday caregiving for a family member living with Parkinson’s disease: a qualitative thematic analysis study

Fekonja, Zvonka; Irgolič, Nadja; Vrbnjak, Dominika

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Naslov:	Family members’ experiences of everyday caregiving for a family member living with Parkinson’s disease: a qualitative thematic analysis study
Avtorji:	ID Fekonja, Zvonka (Avtor) ID Irgolič, Nadja (Avtor) ID Vrbnjak, Dominika (Avtor)
Datoteke:	s12912-024-01767-6.pdf (917,97 KB) MD5: 03B071C5E2DEB321D8DB802D097ED194 https://link.springer.com/content/pdf/10.1186/s12912-024-01767-6.pdf https://link.springer.com/article/10.1186/s12912-024-01767-6/fulltext.html To gradivo ima še več datotek. Celoten seznam je na voljo spodaj.
Jezik:	Angleški jezik
Vrsta gradiva:	Znanstveno delo
Tipologija:	1.01 - Izvirni znanstveni članek
Organizacija:	FZV - Fakulteta za zdravstvene vede
Opis:	Background: In the daily life of individuals living with Parkinson's disease, their loved ones are crucial. Adapting family members to the patient's condition, support in providing care, and psychosocial adaptations is essential. Aim: To explore family members' perception of everyday caregiving for a family member living with Parkinson's disease and to describe their role in the care and everyday life. Methods: In a descriptive, qualitative thematic analysis study, semi-structured interviews were conducted with ten people between the ages of 20 and 70, the closest family members of people living with Parkinson's disease. The analysis of the collected data was carried out using thematic analysis. Results: We generated the main theme: "Living with a family member with Parkinson's disease", with associated secondary-level sub-themes: "Response", "Change", "Care", and "Support". Family members of individuals living with Parkinson's disease frequently encounter similar life situations. The most notable transformation in their daily lives primarily revolves around adapting to various activities. Conclusions: Family members are the ones who most often take on the role of caregiver and provide help to their loved ones. Many of them accept the disease as a part of everyday life and learn to live with it. It is of fundamental importance that we offer family members the necessary support, knowledge, and involvement in holistic treatment and care.
Ključne besede:	Caregivers, Parkinson’s Disease, Family, Patients, Experiences, Patient care
Status publikacije:	Objavljeno
Verzija publikacije:	Objavljena publikacija
Poslano v recenzijo:	18.08.2025
Datum sprejetja članka:	25.01.2024
Datum objave:	06.02.2024
Založnik:	Springer Science
Leto izida:	2024
Številčenje:	Letn. 23, št. 1
PID:	20.500.12556/DKUM-95348
UDK:	616.858-056.34:613-055.5/.7:649
eISSN:	1472-6955
COBISS.SI-ID:	187036931
DOI:	10.1186/s12912-024-01767-6
ISSN pri članku:	1472-6955
Datum objave v DKUM:	15.09.2025
Število ogledov:	202
Število prenosov:	18
Metapodatki:
Področja:	Ostalo
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Gradivo je del revije

Naslov:	BMC nursing
Založnik:	Springer Science and Business Media LLC
Leto izida:	2024
ISSN:	1472-6955

Licence

Licenca:	CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna

Povezava:	http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:	To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:	06.02.2024

Licenca:	CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna

Povezava:	http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:	To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:	06.02.2024

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