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Title:
Family members’ experiences of everyday caregiving for a family member living with Parkinson’s disease: a qualitative thematic analysis study
Authors:
ID
Fekonja, Zvonka
(
Author
)
ID
Irgolič, Nadja
(
Author
)
ID
Vrbnjak, Dominika
(
Author
)
Files:
s12912-024-01767-6.pdf
(917,97 KB)
MD5: 03B071C5E2DEB321D8DB802D097ED194
https://link.springer.com/content/pdf/10.1186/s12912-024-01767-6.pdf
https://link.springer.com/article/10.1186/s12912-024-01767-6/fulltext.html
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Language:
English
Work type:
Scientific work
Typology:
1.01 - Original Scientific Article
Organization:
FZV - Faculty of Health Sciences
Abstract:
Background: In the daily life of individuals living with Parkinson's disease, their loved ones are crucial. Adapting family members to the patient's condition, support in providing care, and psychosocial adaptations is essential. Aim: To explore family members' perception of everyday caregiving for a family member living with Parkinson's disease and to describe their role in the care and everyday life. Methods: In a descriptive, qualitative thematic analysis study, semi-structured interviews were conducted with ten people between the ages of 20 and 70, the closest family members of people living with Parkinson's disease. The analysis of the collected data was carried out using thematic analysis. Results: We generated the main theme: "Living with a family member with Parkinson's disease", with associated secondary-level sub-themes: "Response", "Change", "Care", and "Support". Family members of individuals living with Parkinson's disease frequently encounter similar life situations. The most notable transformation in their daily lives primarily revolves around adapting to various activities. Conclusions: Family members are the ones who most often take on the role of caregiver and provide help to their loved ones. Many of them accept the disease as a part of everyday life and learn to live with it. It is of fundamental importance that we offer family members the necessary support, knowledge, and involvement in holistic treatment and care.
Keywords:
Caregivers
,
Parkinson’s Disease
,
Family
,
Patients
,
Experiences
,
Patient care
Publication status:
Published
Publication version:
Version of Record
Submitted for review:
18.08.2025
Article acceptance date:
25.01.2024
Publication date:
06.02.2024
Publisher:
Springer Science
Year of publishing:
2024
Numbering:
Letn. 23, št. 1
PID:
20.500.12556/DKUM-95348
UDC:
616.858-056.34:613-055.5/.7:649
ISSN on article:
1472-6955
eISSN:
1472-6955
COBISS.SI-ID:
187036931
DOI:
10.1186/s12912-024-01767-6
Publication date in DKUM:
15.09.2025
Views:
201
Downloads:
18
Metadata:
Categories:
Misc.
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Record is a part of a journal
Title:
BMC nursing
Publisher:
Springer Science and Business Media LLC
Year of publishing:
2024
ISSN:
1472-6955
Licences
License:
CC BY 4.0, Creative Commons Attribution 4.0 International
Link:
http://creativecommons.org/licenses/by/4.0/
Description:
This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.
Licensing start date:
06.02.2024
License:
CC BY 4.0, Creative Commons Attribution 4.0 International
Link:
http://creativecommons.org/licenses/by/4.0/
Description:
This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.
Licensing start date:
06.02.2024
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