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Title:Izkušnje svojcev in skrbnikov z oskrbo svojca po travmatski poškodbi glave in možganov
Authors:ID Smajlović, Aljana (Author)
ID Mlinar Reljić, Nataša (Mentor) More about this mentor... New window
ID Donik, Barbara (Comentor)
Files:.pdf MAG_Smajlovic_Aljana_2025.pdf (902,52 KB)
MD5: FC00D054BA114EF6DEEADB516A736CD8
 
Language:Slovenian
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:FZV - Faculty of Health Sciences
Abstract:Uvod: Travmatska poškodba možganov je pomemben zdravstveno-socialni problem, ki močno zaznamuje tako paciente kot tudi njegove svojce in skrbnike. Namen raziskovanja je bil preučiti izkušnje svojcev pacientov po travmatski poškodbi možganov, s poudarkom na njihovih izzivih, potrebah in vlogi pri okrevanju pacientov. Metode: Izveden je bil pregled znanstvene literature v bazah MEDLINE, CINAHL in Web of Science. Vključene so bile kvalitativne raziskave, objavljene v angleščini, ki preučujejo izkušnje svojcev odraslih pacientov po travmatski poškodbi možganov. Kritična ocena je bila opravljena s pomočjo orodja Critical Appraisal Skills Programme, podatki pa so bili analizirani s tematsko sintezo. Rezultati: Skupno smo identificirali 1549 zadetkov. V končno analizo je bilo vključenih deset raziskav. Svojci so poročali o preobremenjenosti, socialni izolaciji in o težavah pri usklajevanju skrbstvene vloge z vsakdanjimi obveznostmi. Izpostavili so pomanjkanje informacij, podpore in vključevanja v odločitve o zdravljenju. Kljub težavam so aktivno prispevali k okrevanju pacientov, zlasti z motivacijo, sodelovanjem v rehabilitaciji ter prilagajanjem družinske dinamike. Razprava: Analiza je pokazala vrzel v sistemski podpori svojcem, ki bi jo lahko zapolnili s strukturiranimi podpornimi programi, večjo vključenostjo svojcev v obravnavo ter razvojem intervencij, ki krepijo njihovo odpornost. Zaključek: Vloga svojcev pri oskrbi pacientov s travmatsko poškodbo možganov je nepogrešljiva, zato je nujno razviti celostne intervencije za zmanjšanje njihovega bremena in izboljšanje psihosocialne podpore.
Keywords:pridobljena poškodba možganov, psihosocialne potrebe, breme oskrbe
Place of publishing:Maribor
Publisher:[A. Smajlović]
Year of publishing:2025
PID:20.500.12556/DKUM-95920 New window
UDC:616.831-001.34:649-056.24(043.2)
COBISS.SI-ID:261862659 New window
Publication date in DKUM:05.01.2026
Views:154
Downloads:57
Metadata:XML DC-XML DC-RDF
Categories:FZV
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Licences

License:CC BY-NC-ND 4.0, Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Link:http://creativecommons.org/licenses/by-nc-nd/4.0/
Description:The most restrictive Creative Commons license. This only allows people to download and share the work for no commercial gain and for no other purposes.
Licensing start date:10.11.2025

Secondary language

Language:English
Title:Experiences of parents and caregivers with relative's care after a traumatic head and brain injury
Abstract:Introduction: Traumatic brain injury is is an important health and social problem that significantly affects both patients and their relatives and caregivers. The aim of this study was to explore the experiences of relatives of patients with a traumatic brain injury, with a focus on their challenges, needs, and role in patient recovery. Methods: A review of the scientific literature was conducted in the MEDLINE, CINAHL, and Web of Science databases. Included were qualitative studies published in English that examined the experiences of relatives of adult patients with a traumatic brain injury. Critical appraisal was performed using the Critical Appraisal Skills Programme, and data were analyzed through thematic synthesis. Results: A total of 1,549 records were identified, of which ten studies were included in the final analysis. Relatives reported feelings of burden, social isolation, and difficulties in balancing caregiving responsibilities with daily obligations. They highlighted a lack of information, support, and involvement in treatment decisions. Despite these challenges, relatives actively contributed to patient recovery, particularly through motivation, participation in rehabilitation, and adaptation of family dynamics. Discussion: The analysis revealed gaps in systemic support for family members, which could be addressed by structured support programs, greater involvement of relatives in care, and the development of interventions that strengthen resilience. Conclusion: The role of relatives in caring for patients with a traumatic brain injury is indispensable. Comprehensive interventions are urgently needed to reduce caregiver burden and improve psychosocial support.
Keywords:acquired brain injury, psychosocial needs, caregiver burden


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