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Title:Proposed law for the European health data space in context
Authors:ID Křepelka, Filip (Author)
Files:URL https://journals.um.si/index.php/medicine/article/view/3265
 
.pdf cervek_m,+5_krepelka_(2).pdf (561,45 KB)
MD5: CE30F982F94C82F9A537C7A0C565DADE
 
Language:English
Work type:Unknown
Typology:1.01 - Original Scientific Article
Organization:PF - Faculty of Law
Abstract:Analysing electronic health records could improve medicine, but personal data protection impedes this research. The European Health Data Space shall unleash these data. The focus now shifts on how best to balance this effort while at the same time protecting patients' privacy and autonomy. Still, we need to address the reality. Research on images, laboratory results and prescriptions will be easy, as they are electronic. However, the written core of health records is not structured, and establishing summaries for all patients is challenging. Regulations instead of directives are a laudable solution to help simplify the situation. Nonetheless, new challenges emerge with the co-existence of supranational and national frameworks if the former is to have far-reaching ambitions.
Keywords:healthcare, privacy, health records, EU integration, COVID-19
Publication date:01.10.2023
Year of publishing:2023
Number of pages:str. 287-317
Numbering:Vol. 16, no. 2
PID:20.500.12556/DKUM-91044 New window
UDC:342.7:61
ISSN on article:2463-7955
COBISS.SI-ID:211810563 New window
DOI:10.18690/mls.16.2.287-318.2023 New window
Publication date in DKUM:28.08.2025
Views:124
Downloads:9
Metadata:XML DC-XML DC-RDF
Categories:Misc.
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Record is a part of a journal

Title:Medicine, law & society
Publisher:Pravna fakulteta, Pravna fakulteta, University of Maribor Press
ISSN:2463-7955
COBISS.SI-ID:281851136 New window

Document is financed by a project

Funder:y Grantová agentura České republiky [Grant Agency of the Czech Republic]
Project number:GA19-17403S (2019-2021)
Name:Nahrazování směrnic nařízeními v Evropské unii [Replacement of Directives with Regulations in the European Union]

Secondary language

Language:English
Abstract:Analiza elektronskih zdravstvenih zapisov bi lahko izboljšala medicino, vendar možnosti za to omejuje varovanje osebnih podatkov. Evropski zdravstveni podatkovni prostor naj bi te podatke sprostil. Poudarek se zdaj preusmerja na najboljše načine za uravnoteženje tega prizadevanja hkrati z varovanjem zasebnosti in avtonomije pacientov. Kljub temu se moramo spoprijeti z realnostjo. Raziskave o slikah, laboratorijskih rezultatih in receptih bodo preproste, saj so elektronske. Vendar pa pisna jedro zdravstvenih zapisov ni strukturirano, vzpostavljanje povzetkov za vse paciente pa je zahtevno. Namesto direktiv so uredbe hvalevredna rešitev za poenostavitev položaja. Kljub temu pa se pojavljajo novi izzivi povezani s sobivanjem nacionalnih pravnih okvirov in nadnacionalnega pravnega okvira, če naj bi prvi imel daleč segajoče ambicije.


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